MS DataConnect

MS DataConnect

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MS-DATACONNECT combines following data (figure  “overview”):

1° patient specific data (e.g. age, gender, date of birth, ethnic origin, ...);

2° disease specific data (e.g. date of disease onset and diagnosis, type of disease, relapses,…);

3° treatment strategies (e.g. treatment, start and end date of treatment, adverse events, …);

4° paramedical data (e.g. physiotherapy, occupational therapy, speech therapy, psychology, …);

5° clinical data (e.g. MRI quantitative markers, electrophysiology, laboratory results, …);

6° patient reported data (e.g. quality of life, life style, nutrition, …)

7° biological sample specific data (e.g. date of sampling, collection procedure information, …);

8° patient and sample phenotyping (e.g. immunophenotyping, (epi)genetic profiling, …)

Overview of the different multiple sclerosis (MS) characteristics implemented in the multidisciplinary repository named MS DATACONNECT

Different project partners contribute with different data sources: rehabilitation and MS center Overpelt (R&MSC Overpelt, yellow line), the rehabilitation research center and PXL university college (REVAL and PXL), blue line, biomedical research institute (BIOMED, purple line) and university biobank (UBiLim, green line).
Data collection processes that is automated are represented in blue.  Abbreviations used: clinically isolated syndrome (CIS), relapsing remitting MS (RRMS), primary progressive MS (PPMS), secondary progressive MS (SPMS), expanded disability status scale (EDSS), magnetic resonance imaging (MRI), cerebrospinal fluid (CSF)