Workshop: How to set-up a Health Data Sharing Initiative

April 22, 2024

Embuild (Hasselt University, Campus Diepenbeek)

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Learn more about the workshop

More info via the video (as presented during OHDSI Belgium online winter event)

Important Dates

  • Pre-Registration Deadline: 29 February 2024
  • Feedback on Pre-Registration: 8 March 2024
  • Confirmation of Participation: 29 March 2024
To secure your spot, we recommend pre-registering at your earliest convenience, especially since availability is limited. Should there be any inquiries or if additional information is required, please do not hesitate to reach out to us at biomedical.datasciences@uhasselt.be

Introduction

Given the interactive nature of this workshop, we are limiting participation to 25 attendees to ensure a productive and focused environment.

To create a diverse and balanced group, we are implementing a two-round registration process.

There is great potential in large-scale collaborative efforts using health data.
However, it remains challenging to kick-start these types of initiatives.
The following key questions and challenges can obstruct a consortium to kick-start a project:

When we are referring to the term "large-scale collaborative efforts using health data", the following initiatives are within scope:

High-level outline & approach

Part I (before lunch): Navigating the Roadmap of Setting-Up a Health Data Sharing Initiative
During this session, the participants will be introduced into the high-level roadmap of setting-up a data sharing initiative. We will delve into the initial stages of ideation, mission-vision definition, stakeholder identification, and engagement strategies necessary to establish a solid foundation required to successfully kick-start the initiatives.
Afterwards, we will introduce them into the process of fine-tuning the idea, governance principles, data collection, harmonization, quality assessment, and finally, transforming data into insightful visualizations, ensuring a holistic approach towards initiative setup.

Part II (afternoon): Practical Examples and Hands-On Exercises
Some basic concepts of data handling and analyses will be explained through simple hands-on exercises. For example, participants will engage in practical exercises involving transforming data from patient-level to aggregated, while also addressing concerns such as handling missing data and ensuring data quality. Next to this, we will explore how insights can be visualized through a dashboard interface.

  • Important note - these exercises will be simple and will not require coding experience or expertise in data science.
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Pre-Registration Process

Step 1: Interested individuals are invited to pre-register by filling out a brief questionnaire, which includes providing your motivation for attending the workshop.

Step 2: After reviewing all pre-registrations, we will select participants based on various criteria to ensure diversity in gender, disease area, experience in large-scale collaborative projects, and geographic region. Selected participants will then receive a confirmation and further details about the workshop.

Why Pre-Register?

This is a unique opportunity to:

  • Gain insights into setting up and managing health data sharing initiatives.
  • Network with peers and experts in the field.
  • Share your experiences and learn from others.
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How to Pre-Register

To pre-register, please click here

In the pre-registration form, you will be asked to provide:

  • Basic personal information.
  • Brief background on your experience in collaborative health projects.
  • Your motivation and what you hope to gain from this workshop.

Pre-register Here

Privacy Assurance

We value your privacy. The information provided will be used exclusively for the selection process for this workshop. All personal data will be handled in strict confidence.

We look forward to your participation and a fruitful workshop experience!